Showing posts with label development. Show all posts
Showing posts with label development. Show all posts

Thursday, 25 October 2012

Impacts meeting for Holly

Sue and I attended an Impacts meeting for Holly today.

We had all the professionals in Holly's life there - speech and language, paediatrician, physiotherapist, dietician, and occupational therapist. Only person missing was her play therapist.

We sat around a talked about how we all thought Holly was getting on with health, feeding, development, etc. and if there were any concerns.

It was quite a good forum for everyone to get to understand Holly and her condition from all angles and get a better idea of the big picture.

It was also encouraging to hear from all the professionals there that they thought Holly was making wonderful progress and that some of the concerns Sue and I had (like Holly not really taking to the sippy cup all that well) were to be expected for a normal child of her age. She's not out of the woods yet though, as her development is still behind a "normal" child of her age.

We are going to reconvene in 6-months time to see where we are with Holly's situation.

Tuesday, 25 September 2012

Holly is "Chatty Patty"

Holly. Things are going well.
Over the last few days, Holly's really started coming into her own and developing her own voice.

Neither Sue nor I have a yardstick to measure her development against, with Emily's autism viewed in hindsight, but I'm not sure if things DO happen overnight.

Sue and I have been trying to get Holly to mimic us, doing the "buh, buh, buh" sound and shape with our mouths, but recently, Holly's started "talking" to us. She's also developed additional cries. She's previously really only had the "I'm awake feed me"cry. This has now been augmented by a sort of "I'm here, play with me" cry that's not as intense.

It's very interesting seeing the development of Holly and even the experts are saying they're seeing quite an advance in her behaviours, etc.

On the flipside, she still has more movement than she needs and there's still concern over this. Over the past months, Sue and I have learned to take any silver lining as a silver lining though. I'm just happy something good is happening.

Monday, 25 June 2012

Holly is looking brighter

Over the last couple of weeks we've noticed a definite, positive change on Holly.

She's much brighter, more alert, smiles more and follows you around the room. It's all the things we could have hoped for, for a child verging on six months old (tomorrow).

She still has her spasms, especially in her leg (for which I've nicknamed her "Mississippi Leg Hound" purely for the crazy leg movements, not for the rest of the Christmas Vacation reference).

She's rolling on to her stomach unaided, which is good. Usually this is followed by a little "help me" cry as she lies there unable to turn back over. Today, however, she was able to roll on to her stomach and then back on to her back, unaided.

We've also introduced new flavours and textures into her diet, to promote the next stage of eating. She's eating more paste-consistency food (thanks to our food processor) and Sue's cooked up some baby recipes with chicken in them, so Holly's getting her first taste of meat!

Emily's still ignoring Holly, but every now and then we notice her spying Holly out the corner of her eye. I think as Holly grows up and becomes a bit more predictable and less of a random crying machine, Emily will warm to her. She's only been around Holly for about six months now, which isn't all that long in the grand scheme of things (obviously it's a lifetime for Holly).

Thursday, 28 July 2011

Who's child is this?

Today I picked Emily up from Fennies and she was in high spirits. She was quite warm and I was told she had a bit of a temperature.

Gotta keep mum with this place or Emily gets banned for 48 hours at a time at the first hint of illness. I said I put it down to warm, clammy weather, not the stream of obviously infected green snot coming out her nose.

When it came time to leave, I mentally prepared myself for Emily to ignore everyone and leave the room... while everyone said goodbye... and I was left looking the lump.

Tonight, not only did Emily SAY goodbye, she walked up to each of the minders (are they minders? teachers? nursery workers?) and said buh-bye and waved her hands at them.

I just stood there gobsmacked, thinking who's child is this? Where's the one I dropped off this morning who wouldn't know a social convention if it crept up behind her introduced itself and asked for the time.

Every now and then I catch these glimpses of what I hope Dragonflies will be able to nurture out of our little Em.

There is hope once again for the future, a future I haven't said buh-bye to yet.

Tuesday, 31 May 2011

More words and making herself understood - "hong wee"?

Emily's getting there making herself understood. It's still a ways to go though.

This evening while I was making dinner, she brought me a box of cereal, telling me what I believe was "hungry"... which obviously sounded a bit more like "hong wee".

She's still crying when she's thirsty, hungry, tired, bored, etc. but these little flashes are a good sign we're on the right track.

Thursday, 10 February 2011

Double appointment day!

We're finally in full swing with appointments for Emily.

This morning we had our NHS appointment with the speech therapist and this afternoon was Portage. I wasn't able to attend both, so made it to the speech therapist, as we hadn't seen her since October.

It was more of a recap meeting that anything else. She was quite impressed with the progress Emily has made and felt that the various strategies put into place from the various other organisations was paying dividends.

We also asked about the paediatrician issue where we won't be seen for another six months. She let us know that a number of autism assessments aren't really optimal for children under 3 years old. Given the normal NHS back log, seeing us in May or June doesn't actually seem all that bad now. Just wish we were told this at the original meeting. Also, the doctor we WILL see is apparently quite good.

This all culminated in the should we / shouldn't we debate about going private. There's the concern, raised during the meeting as well, that we will put on a parallel course of therapy and it will be up to Sue and I to police it between the various organisations.

Although Em is still developmentally behind - she's only NOW saying words that a "normal" two year old should be saying - I'm quite happy that we are getting lots of help and strategies to help her and that (most importantly) she seems to be responding. I can only imagine if we were doing all this and there was NO improvement.
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Friday, 4 February 2011

Fennie's development meeting

After the high of our visit with Portage yesterday, it felt that any more meetings regarding Emily could only be a let down.

It was nice to be proven wrong when we met with Fennie's and the Croydon Council worker who is going to help them initiate strategies to help Emily.

I came out of the meeting feeling that the tide seemed to turn and that people had Emily's best interests at heart - and not just going through the paces and offering bureaucratic rhetoric when it fit them.

The nugget of information that really solidified today is that Emily is really quite a fast and brilliant visual learner. Pictures, symbols, etc. really get her going. I'd like to think that Sue and I are doing a lot of this type of teaching, almost by accident, but it's stuck in my mind since the meeting and I'm going to try and keep my concepts and chatter with her as visually aided as possible.

Today, I feel positive. It's good. Oh God, Emily... what's that smell???

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Thursday, 3 February 2011

Portage second visit

We had our second visit from Portage today. This is an organisation that helps disabled and learning impaired children under the age of 3.

We had about 45 minutes of intensive learning-helping play with Emily where she had to choose, take turns and do other developmentally helpful activities.

Sue and I then listened to Sheila (from Portage) give us more information about services and help available to ensure that we do everything we can for Emily to get her over the current development issues she has.

There are schools we can sign up to (Dragonflies), government grants we can apply for to help with the cost of her private speech therapy and all sorts of other things.

As the icing on the cake, Sheila also left some of the toys she used with Emily so Sue and I can use them to coax her out of her shell.

We also have to enact "special time" which is where we let Emily play with a bunch of toys and mimic her while doing a football-style commentary ("Emily is hugging her bear.") I'm going to try and do this every night when we get home and see where this gets us.

I'm glad we're getting this help ... finally. Of all the people we've seen so far, the help and advice from Portage has been 100% invaluable. By far the best resource we've dealt with yet.

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Tuesday, 25 January 2011

Clingy klingon

Lately Emily's been rather lovely-dovey and huggy-wuggy.

I understand all kids go through a clingy phase and this must be hers. However, at some points the constant neediness can be quite distracting.

The last couple of nights I've had to put a DVD on for her, so I can steal away long enough to put the dinner on. Although, she generally doesn't stay in her chair when she eats as she reaches out for a hug and before toppling over, I end up feeding her from my lap.

I know I shouldn't look a gift horse in the mouth, as when she's a moody hideous teenager I'll be wishing for any acknowledgement of my being, let alone a cuddle or a hug. It's just that too much is sometimes a little too much.

Tuesday, 18 January 2011

Post paediatrician, back at square one

We had the developmental paediatrician appointment today and I have to say, it was a disappointment. We weren't expecting all our worries to melt away, but were hoping for more than what happened.

We sat there, and then went through the same thing we've done with everyone else we've seen - explaining what Emily can and can't do, she performed some tasks, etc.

The doctor then told us we would be seen in 4 - 6 months. Yeah, MONTHS. So much for any ongoing treatment, any follow up appointments.

They did rule out any physical issues and said that it was all developmental. Still, autism (in any part of the spectrum) couldn't be ruled out after only one visit and as the next visit isn't for another 1/2 year who knows what the hell they'll find.

To say I was disappointed on the way home is sugar coating it. Both Sue and I were quite devastated. Any faith I had in the NHS has had the final nail put through it today. We need to really come up with a plan B to get Emily's issues sorted out.

Paediatric appointment today!

After months of waiting and an episode where we ALMOST paid £250 per HOUR for help, we're finally off to see the developmental paediatrician today at St. Helier's Hospital.

We're not expecting a silver bullet solution to Em's learning delays, but hopefully it's the beginning of a course of treatments or visits that will result in her improving dramatically.

Watch this space!

Wednesday, 23 December 2009

Finding her way or becoming spoilt?

Emily's getting to that age where she's becoming quite independent ... or so she thinks. She wants to walk where SHE wants to walk, do what SHE wants to do and if she can't, we'll hear about it - usually with a scream in our ear.

Up until now, I always thought terrible parents were terrible because they were lazy or didn't care, but I really begin to wonder where the line is with children. Is Emily learning as she goes, or is she testing boundaries? Are these the seeds of an ASBO child that we have to guide, or is it a natural part of development to not want to hold hands crossing the road and spraying the wall with food?

If it is a natural part of development, how do we react?

Last night, Emily threw food on the floor, and I tapped her hand and sternly said no. As she's not an adult, she didn't look at me and say, "Gosh. Sorry dad, what the heck was I thinking?", she looked at me and balled her eyes out, as I picked bits of quiche out of the carpet and surrounding toys. I understand children have the attention span of a gnat, but I firmly believe I need to ensure Emily starts to know right from wrong, or is it too early?

Parenting is hard. I guess bad parents are those that understand this, and choose the easy route, I don't know.

Saturday, 1 August 2009

Almost walking

It's the pre-milestone moments that are the most amazing. The milestone moments themselves are quite bittersweet, as you know your child can finally do something is amazing, but the build up over the previous weeks and months is no longer there. All that work - trial and error that went into the activity is now over, and all you're left with is your child being able to do something they couldn't do before.

I guess this is just natural, or else my mum and dad would call me up every day and a) be amazed I can talk and b) be amazed I didn't kill myself with them not around to look after me.

As I write this, I am currently committing to memory the last few pre-walking milestone days we have left with Emily. She's able to take a couple of steps by herself and then either teeters over or collapses. It's been a lot of work for Sue and I, as well as a lot of work for Emily, constantly being told, "c'mon Em, you can do it", like you'd say to a pet dog or trained chimp.

After this milestone, I don't really know what's next - talking? brushing her teeth by herself? eating WITH chewing?

It's a lot of fun seeing development through a child's eyes and long may it continue.

Friday, 10 July 2009

Developmental concerns?

Every child develops at their own rate, and we're recently begun an offensive on Emily to get her development up to scratch.

Having said that, I think we missed the boat on her doing baby rollerskating breakdancing.

Wednesday, 1 July 2009

The girl who doesn't age

Whenever I complain about Emily, in the back of my mind I know I should count my blessings - she has all her appendages, she's growing well, and doesn't have any physical impairments.

When I read tales like the one about Brooke Greenberg, the 16 year old girl who is the size of an infant with the mental capacity of a toddler, I really feel thankful for Emily.

When you have a child you naturally have the highest expectations for them - they'll cure cancer; they'll colonise Mars; they'll marry the other best person the earth has ever created they'll grow larger than an infant. More times than not, you'll be disappointed in some regard, but to expect your child to grow and mature shouldn't be one of those disappointing "didn't happens".

Apart from Brooke being mentally and physically 14 years younger than she actually is, I can't help feel for her parents. They're not going to be "parent age" for ever, and what will happen when they're in need of old age care and their child is still a two year-old?

I love Emily and her toddler ways, but the knowledge that development and growth is constantly happening is one of those anticipations that parents look forward to. WHEN will she walk? WHAT will her first word be? With Brooke, these expectations will probably never come to fruition and that's sad.

Sunday, 8 March 2009

Toddling

With Emily turning one next week - next Sunday - it's amazing how much she has to learn, but also how much she is learning. There are days when it seems she's picking up new skills quite quickly (like looking like Elton John).

This week, she's pretty much learned to self-wean, even with smallish items like blueberries. Up until this past week she wasn't really doing any self-feeding.

We've also got her standing around. Although this is a FAR cry from walking, it's a good step towards balance and stability. Sue's been doing baby steps with Emily too this weekend, so the next step I guess is Emily walking along the furniture.

Emily's also started waving, with what we can only assume to be intent. Previously she'd flail her arms relentlessly and if it was we were greeting or leaving, we'd attribute it to a wave. Now though, she seems to be doing it on purpose.

One of the lesser wanted traits she's developing is the tantrum, or "tanty". Yesterday, her face went bright red and all screamy, as her attempts to get a drink failed ... badly.

I guess we have to take all the good with the bad. I can't wait until she can walk, or talk or read, etc. but I know it'll be tempered with the moods, the tanties and the terrible twos.
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Thursday, 19 February 2009

Fruity little miss

Having picked Emily up from Katherine the child minder's today I was told that Em couldn't stop blowing raspberries. This comes as quite a shock (or very least surprise) as she's never really done this before.

I assumed it was a daytime, with the child minder thing and left it at that. Lo and behold, we're not home an hour before she's doing it for me too, complete with soaking wet, spit-soaked chin. I've heard tell of other children doing this, and I guess it's a developmental stage, but I just don't know what it means.

Will have to investigate further.

Update: Apparently, Emily blew razzies before at around 6 months and then stopped. We've surmised it might be something to do with teething still.
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Thursday, 17 July 2008

Scoocher McGee

Over last week or so, Emily has become an increasingly mobile little creature... and it's worrying.

It all started with her pushing herself off her change matt with her legs. Now it's got to the point where she's "back surfing" around the living room, starting off on her baby gym and ending up across the room in pretty record time. This has all been documented on camera phone by Sue.

It was all smiles and giggles until yesterday when Emily decided to back surf into an ottoman we have near the dining table. Sue was very careful to cover any dangerous surfaces on the coffee table with pillows, but you can never hold a dedicated scootcher down and Emily went careening into the ottoman.

Many tears ensued and we decided sooner rather than later is when we need to baby proof the flat.

So far we have her wriggling and almost being able to turn over on her back, now we have her moving around the room. Her development has been quite interesting to witness.

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Tuesday, 29 April 2008

Playtime

Emily's getting to that age where she's able to focus on things (like faces, etc.) and she can stay awake without bawling her eyes out for food.

Last night I had an entertaining play time with her sticking my tongue out and just generally trying to keep her entertained. I also got a couple of smiles out of her which was pretty nice.

I was reading today about how to play with babies, especially how to play without toys (as Emily doesn't seem interested in holding anything at the moment).

It basically broke down "playtime" into a number of categories - nursery rhymes, let baby mimic you, talk to baby and let baby play with household items.

We haven't really done many nursery rhymes with Emily, but the advice also says to tickle her and get her involved. I can do this!

On the mimic front, it suggests smiling or sticking your tongue out and getting baby to do the same. Having read this, I'm glad I was able to discover this last night for myself.

Both Sue and I talk and sing to Emily, and we get the odd response, but the advice says "babies don’t have to be able to talk to have a conversation" which is encouraging.

I have a suspicion that they only need to cry to have a conversation. FEED ME NOW!

Ah the joys of parenthood continue.