We had the developmental paediatrician appointment today and I have to say, it was a disappointment. We weren't expecting all our worries to melt away, but were hoping for more than what happened.
We sat there, and then went through the same thing we've done with everyone else we've seen - explaining what Emily can and can't do, she performed some tasks, etc.
The doctor then told us we would be seen in 4 - 6 months. Yeah, MONTHS. So much for any ongoing treatment, any follow up appointments.
They did rule out any physical issues and said that it was all developmental. Still, autism (in any part of the spectrum) couldn't be ruled out after only one visit and as the next visit isn't for another 1/2 year who knows what the hell they'll find.
To say I was disappointed on the way home is sugar coating it. Both Sue and I were quite devastated. Any faith I had in the NHS has had the final nail put through it today. We need to really come up with a plan B to get Emily's issues sorted out.
Not sure what the issues are, but we went through a lot like that with Rain. We still can't rule out ASD, but we've done what we can to advocate and accommodate. Keep making phone calls if there are still people to call. If there are parents, or a parents group to join, go ahead. All you can do is keep researching, and demanding service. We didn't take any specific diagnosis lightly, nor as gospel.
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