A couple of months ago during a routine visit from Sheila from Portage, she raised the issue of Disability Living Allowance and whether we'd applied for it. Like any parent without a seriously disabled child (Down's syndrome, missing limbs, etc.) we didn't think we could get it. Having been told it's for any parents who go above and beyond what is considered normal to raise a child, we decided to apply for it. The worst that could happen? We're told Emily's too normal and get rejected.
It was rather bittersweet that I came home today to an envelope from the DLA to tell us that we've been accepted to receive this. I assume it's not as much as a child in a wheelchair or who needs round the clock care, but it's enough to offset speech therapy and some of the specialist things we've bought Emily to help her get over her language and speech delays.